Saturday 21 December 2013

Its nearly Christmas - how has the first term of Year 4 been?

Hello Blogland

Wow - this first term of Year 4 has been a real rollercoaster ride.  We have reached the end of the term on a high - and had some twists and turns and lows in the process.

Year 4 = New Teacher = New Rules....

It took a few weeks of teething problems (nearly half a term) but now I can safely say I think we are all sailing on The Good Ship Lucas together.   Things came to a point, and I decided a 1-1 was needed, and I typed up one of my famous essays (2 pages long) stating my feelings (as I am useless at speaking under pressure) and I can honestly say that meeting (stressful!) was a real success - a turning point towards the sun!

I also arranged to see my Parent Support Worker again at this point (as I was drowning!) and I had a half-hour meeting with her that turned into 2 hours - again fantastic progress! - resulting in her visiting Lucas in school again and working with him personally and discussing his condition with him, positively! with books and structures and ladders to climb.   I think what I learned from this exercise was - if you feel like you are drowning - speak up! - arrange meetings! - speak your mind! - there are no wrong answers, only ways to look to go forward - type up your views and then hand them over - and then doors open and waves calm and everyone progresses and Lucas wins.

Lucas has been changing his goal posts and also getting stressy alot more, especially at school but this is part of the system.

Lucas has been destressing on the Tennis Court - and it is so lovely to see the magic of destress here.

Lucas has been getting good results in his Groups, and on Halloween we progressed and entered him into a Club Tournament - just to see how he would react to the change of conditions - his coach was running it :) and it was at the Club - but it was the first Tournament I paid for him to enter! - he came 5th! - but I told him it didn't matter where he came, as long as he behaved in a proper manner, obeying all the rules and did his best - also saying I would be more proud of him him to come last and play his best than if he won but was naughty and messed around.   Oh I hope this makes sense!.

Long story short - he came 5th - Mel said - but he was wonderful! - his behaviour was impeccable, he was so professional, he got his scoring perfect all times and tried really hard - he was brilliant - RESULT!

(PROUD PARENT!) - That was Halloween.- he was also dressed as a Zombie.

Since Halloween the weather had turned colder, and Lucas had some time off school (ear infections) but he still persevered.  A few more meltdowns, but steps in the right direction.

As he did so well (behaviour-wise) at the Halloween tournament I signed him up for the Christmas one as Mel said it would really do him good.

The day came, and unfortunately he had a really bad day at school! - I think about 3 different events happened and I was in 2 minds whether to pull him out of Tennis that night.  I am so pleased I didn't.   I went along to watch, ready to pull him out and take him home if necessary.   I WAS prepared to do this and told Mel too.   He changed.   As soon as he joined the group for their Tournament Instructions - he changed.   There was a little light above his head - he was in his happy place.  It was wonderful!

He was listening, paying attention, being a ball boy, fetching, carrying, being nosey, being helpful - being in his element! - it was amazing.

Then he played his first match - against the boy that eventually won the event - (10 minute games) the result was 4-4 with a Killer Point decider - Lucas lost - but it was a great match! - I was really impressed! - then I needed to leave him in his happy place and return to pick him up afterwards - he was in his happy place.

He had a 1-1 on Thursday and I discussed the Tournament with Mel.   She told me that she was so proud of Lucas, his behaviour was brilliant, and if there was marks for Technical Merit and Artistic Impression he would have won the day.   Proud Parent!  He also had an amazing 1-1 lesson too.

We know some areas he needs to work on (Thanks Don - I heard what you said during our chat) and we have a Game Plan! - and he didn't want to leave the court.....

I know that many people who may read this come from a wide Spectrum on the Tennis World, but as my experience of being a fan, it is so wonderful for me to see Lucas' "magic" shine through against his condition.
I will use Tennis to fight Aspergers - and the score this term is definitely 6-3!

Best wishes to all

Merry Christmas and Happy New Year













Sunday 15 December 2013

Arthur Episode - George and the Missing Puzzle Piece

Lucas loves watching Arthur.

I knew there was an Aspergers Episode, but hadn't actually seen it properly, I have been recording them, hoping to catch the episode - Gotta Love YouView!

Today was the day my fishing task was a success.

Lucas and I sat down to watch it together.  I tried to tell him to turn his laptop off - but hey - he can multi-task.

We watched it.   He paid attention - especially to the trains!

It has hit all the facts right on the head - for an 8 year old! and was an excellent episode.

I asked Lucas questions at the end - and am now locked in this room - having an emotional moment.

Lucas is so like Carl!

George and the Missing Puzzle Piece

Now I had the title I found it on Youtube easily - typical :) - so here it is for others to see.

Recommended

OK now back to sorting out the toys....

Thursday 19 September 2013

A Davis Cup Draw Ceremony - Competition Winner - Yes that would be me :-)

ON Sunday afternoon I was (like most Tennis Fans) sat in front of a Computer Live Feed - watching the Tie of my Choice.   My choice was the dead rubber day for Cze & Arg (OK OK so I was bench watching! - and watching two pretty damm good matches too!) - while following the DC Live Blog, and Facebook and Sky News (just to keep up with other things in the world) and YouTube and - well basically I spent the afternoon surfing and multitasking - and making a Steak & Cheese Wrap (disclaimer! - Lucas was at Auntie Mandy's having a wonderful day!) - it was so nice and peaceful.

A tweet appeared in Twitterland...

Davis Cup ‏@DavisCup We have an amazing opportunity for #DavisCup fans in London! Email competition@daviscup.com for your chance to come to Wednesday's draw!

I thought - Hmmm - I can be in London on Wednesday.... - and fired off a quick please enter me into your competition email - (as you do!) and then thought nothing of it.

That was Sunday...

Tuesday lunch time - Marcus and I were dashing off somewhere quick while Lucas was at school - before we left - I did the quick email check - and up popped a "Congratulations!!! - you have won - you have been invited to attend the Davis Cup Draw Ceremony Tomorrow - please follow the attached instructions - Dress Code is Smart Casual! - see you tomorrow morning at 10:30

OMG

I did a quick ring round to see if anyone could come with me - due to the short notice (surprise surprise) noone could - so I was really brave and I went on my own.

Please note. from 2000-2008 I WAS a really confident, Tennis Fan that was not shy, and could ask anybody things (within reason) and take photos for friends etc - I WAS that person, but with the exception of  2 amazing days in 2012 (Olympics Wimbledon and The 02 in November) for the last 5-7 years I have turned into a very shy scared parent who is now only very good at shouting (politely) to persons of authority relating to Lucas' upbringing - I am  NOT an active Tennis Fan anymore - I DO hope that this is changing - today was definitely a step in the right direction.



I did think about saying I couldn't make it - but then the little gremlin on my shoulder said - GO! - SO... I did.

Smart Casual.... HELP! - I think I scrubbed up ok.

9:35 - I'm on the train.... thinking what am I doing!
10:20 - I am in the Street standing next to the building.. OK - NOW I have to go through that door.

10:30 I have a badge! - with my name on it! - cool! - I did have a quick look on the table at the other badges laid out - and I saw the 2 main people in charge (whose names were on the invitation) had not picked their badges up yet - so I wasn't late! - what a relief.

I was escorted up to the room.  Smart Casual??????? Everyone was in suits! - but it was ok, I think I looked smart.   During escort up I was hoping there were more competition winners (praying!) I hate being made centre of attention - I like hiding behind trees.

In the room. Would you like a pin?  Yes please! - I collect pins!

I find the group of other Competition Winners - YAY! there are 4 of us! - so we immediately bonded!  There was a huge media prescence.  Then I remembered the Live Feed was going to take place.   I was instantly terrified my phone would ring - I tried turning it off and silencing it - but was not completely satisfied it was definitely on silent and switched off  - so, I took it to pieces.  It made sense to me at the time!

Once I knew my phone was dead - I relaxed and while chatting to the others I switched from Parent to Tennis Fan - and then started to have fun. We bonded, and started discussing the weekend ties, asking the inevitable - who are your favourite players & teams questions.   Our Answers:  Pico, Rafa, Spain and Argentina - and Andy Murray :) - and of course we were all happy that GB were back in the World Group too.

THEN Andrew Castle comes over to us to say hello - that was nice of him.

He then explains what is going to happen, and seems really nervous about the Live Feed - I found this a bit of a surprise - as he is a TV Presenter on Daytime TV Every Day (note to self... maybe he could do an exchange programme with another Tennis Player Daytime TV Presenter).

All systems go.... The Live Feed is ON - and we are live to millions all round the world.

Team GB Captain was there and was interviewed and congratulated for getting GB into the World Groups - and was asked which team he fancied being drawn against - he gave a list of choices he didn't fancy.... Nadal on Clay for example :) - it was a very lighthearted interview.

The Heads of Tennis Federations - or extremely important Tennis People for Great Britain, Argentina and Spain are the three men then did all the drawing.

The Draw takes place for the lower division groups first.   Slip goes into Ball, Balls go into Cup (THE CUP - that big thing on the big wooden shelves) - Balls come out - and Slips get read out - and the draw gets drawn.   Umpire Enrico (who also had a chat) catches each ball - and places into the bucket next to him.



Another man instantly called out which country would be the host - within 10 seconds! (impressive!) and various other draws also take place for choice of grounds (if required) and exceptions to rules are read out and actioned upon.

A very well oiled machine.

THEN we come to the World Group Draw.   I was secretly hoping for GB v Argentina because I knew this tie would have to take place in GB - easy for me to get to - haha - failing that I was thinking Italy would be good.

The Draw starts taking place.   Czechs up the top - Serbia at the bottom.  Then Spain, Argentina, France, Canada, Kazakstan, USA were drawn out to choose their lines in the draw.   Argentina got slot 12 - NO Czech Semi Final!!!!!!!!!!!!!!!!- YAY!!!!!!!!!!!!!!!!!!!!!

Then one of the exception to the rules was read out.   Germany and Argentina had already met twice in the first round.   Its the RULES they can't meet for a 3rd time.  So, Germany got their slot drawn in the top half - and won SPAIN :-)

Czech Rep v Netherlands
Japan v Canada
Germany v Spain
France v Australia
USA v GB
Argentina v Italy
Kazachstan v Belgium
Serbia v Switzerland

So.... GB got USA in USA


then Argentina were drawn against Italy - at home - a good draw for them.

Switzerland got Serbia! - interesting!!!! Will both Roger and Novak play that one??

The Draw was completed, and the Live Feed switched off - and THEN all the men in suits breathed sighs of relief :-)

The Press then started doing their interviews.  One of the other Competition winners explained she had done a charity auction with some memorabilia donated by The GB Captain, she said she'd really like to see if she could say thank you to him.   At this point he was being mobbed by official press people.   I said I'd stay with her if she wanted company - she was very happy for the moral support :-)

While we were waiting we were near the draw table, with all the slips of paper and draw balls.   We politely asked one of the Host Ladies what would be happening to them, and (long story short) my new friend had the Great Britain Draw Ball and I now have the Argentina Draw Ball.

Then she got her meet and greet - he was very nice and easy to chat to.  She asked lots of questions and got lots of interesting answers.  Of course, I then provided her with 2 photos of her and the GB Captain.   THEN it dawned on me she was the same girl I took a really blurry picture with Andy Murray at Queens.  I checked with her - and yes it was - I have been feeling really bad about this - haha - but I definitely made up for it today :).

SO, we left the room with memorabilia, pin and the Official 100 years of DC 2012 Book each - this will be used as signing material by me in 2014 - I have the pages marked out ready :)



We then went down for Canapes - and felt much happier chatting with the waiting staff - all in all the 4 of us had a great, surreal morning.

Thank you Davis Cup for this opportunity - from 4 of your Fans that appreciate the work that goes into organising this year long event.

Today was a great experience for me - I definitely felt that after such a long time - I was BACK IN THE GAME :-)

Steam!!!!!!!!!!!! - careful - its hot!


Letting off steam!


despite being proactive and telling the teachers and all the staff about Lucas' problems with timekeeping and his lack of realisation that he needs to be in school at 8:55am - and explaining this to the teachers and thinking I had their understanding of this particular ASD trait - and making a point of really making the effort - new term etc - and verbally speaking with teachers each morning - I have just received a personally addressed "late attendance" letter - so I went back and saw the receptionist and gave her a piece of my mind. Her reply? Oh we have to follow protocol...... — feeling angry.
Like ·  ·  · Promote · 22 minutes ago · 
  • Louise Its ok - because NOW I will be a Mummy Monster every morning - and they will get Lucas-Monster delivered at their door at 8:50 precisely - instead of nice relaxed calm Lucas at 8:56 - then they can discuss "protocol" with me
  • Louise just for the record - Lucas has an ASD behaviour change trait every day at 8:35 - he has had this trait every day for the last 5 years... - You can set your watch by it - the next one will be 8:35 tomorrow morning! - it is due to going to school - can't wait for tomorrow morning!
  • Louise - apologies - this rant "should" be in my blog - but the steam escaped here - before I could get there....

Friday 6 September 2013

Year 4 and the Sledgehammer Returns

Hello Blogland

How are you?

We had a great summer break - relaxing, no overnight breaks anywhere - but it was lovely just not being tied to the clock at all.

Year 4 started - I was a nervous wreck.   Lucas was fine - but I was a wreck.

I had not met Lucas' teacher, (there was an opportunity last term - but it wasn't convenient) - Lucas had had sessions with her so that was fine.

The Night Before School (Year 4) began I decided to type up a "Good Luck New Teacher Note"  and put it in his book bag.   I filled the letter with all the changes over the holidays that had happened - and told her that he was now aware of his condition - and was talking about it! - and politely asked her that if he did start suddenly talking about his condition - please don't shut him up but encourage him to talk - as I think this is his way of accepting things.

I didn't want to speak to his teacher on the first morning as she had 29 other little people to get to know - I thought a note would be best I also slipped one one of the NAS Aspergers Notification Cards in the envelope too - with his name on it.

Oh I think I covered the bases and prepared for New Year as best I could.

I saw the Teacher the next day - and she thanked me for the letter - saying it was fantastic! - and that Lucas had a great first day, and to come and chat to her at a moment's notice and other really positive "I read your note" words too.  WOW - a good start to the year!

At the end of Day Two, Lucas was at home, and suddenly the Sledgehammer Hit us - Hard! - A MAJOR UNEXPECTED "behaviour problem" appeared - and it was a shock to both Marcus and Myself - a big shock - completely unexpected - we dealt with it the best way we - as Lucas' Parents thought best -

Lucas then went into Major Meltdown and Meltdown proceedings took precedence, along with Meltdown recovery.   I don't know about other Parents - but it always takes me a good day or two to recover from one of Lucas' Meltdowns.   I think I am still reeling a bit - and its Friday.

I am also trying to fight the Depression Gremlin - I am going to win the fight with the Gremlin - he will NOT beat me.   He may think this week he has scored some points from me.   BUT I will not be beaten!

We were hoping to meet up with some friends next weekend.  BUT due to "lots of reasons" - our part of the reunion has had to go on hold - AGAIN!!!!!!!!!!!!!!!!!!!!  - I think this is about the 10th time now.

I am finding it very hard to accept it - I am fed up of having to cancel all the potential nice aspects of my life ALL the time! - I want this to change.   I am not a selfish person - I am a loyal person - I bend over backwards to help others and just wish the goal posts would stay still and the obstacles stay away - I am pretty sure one of my friends thinks I cry wolf all the time.... but sadly I don't - I just have other obstacles thrown in my way instead.

Message to the Man Upstairs - My obstacle remover is now broken beyond repair - please stop sending me obstacles - thank you.

Love and best wishes to all my friends.



Louise

Tuesday 13 August 2013

Thoughts - it has been a few years between Hospital Visits....

Hello Blogland

How are you?

It is the Summer Holidays - and we are part way through - so far so good! - its been great not having to be tied to the constraints of the clock.

We haven't done much - Lucas has been playing Minecraft alot - he's happy - we have been out and about Geocaching alot! - I've managed to lose 2lbs from walking/hiking/geocaching! - cool!

Lucas has had some lovely playdates - urban geocaching with Sienna last week was so lovely - we are going to try "rural" next week.   Yesterday he met another of his friends in the park for a picnic, it was so lovely seeing him mingle with his friend and his friend's brothers and sisters - he looked like "one of them" it was wonderful.

Lucas has developed a really lovely little circle of friends.

OK... so he fell off the 2 person swing and got hit on the back of the head by the swing which had gathered lots of momentum and struck L on the back of the head....  tears flowed and the beeline to me was perfectly straight.  After 10 minutes of TLC and initial first aid - and checks he was ok, he had not been sick, given a drink etc etc L was back on the swings again having lots of fun.

It was a  REALLY lovely afternoon.

We got home about 5pm - but Lucas was not firing on all cylinders.   He was happy, but docile.   Then he started complaining of a Grade 5 Headache (1 to 10 on the pain scale) with added dizzyness too - his eyes were not good - a bit bloodshot.  SO... I discovered how to use the NHS 111 system.   After a 30 minute telephone interrogation Lucas and I were instructed to spend the next 3 hours in A&E.    Lucas had never hit the back of his head before - so I was "a little bit concerned" - and maybe I've watched too many episodes of CSI - too - haha.

Lucas was very good waiting in the waiting room - but after 1 hour he was starting to head towards a meltdown.  His headache had gone up to a 7 -  He had been observed already but was showing signs he was not happy in the waiting room - I was a big brave girl and went up to one of the nurses and (with NAS card in hand) said - I think Lucas is heading towards a meltdown... the nurse was lovely! - She explained there were another 3 people in front of us still, but she would clear a cubicle for us - and within 5 minutes we were in our own cubicle and the same nurse came and did all the observation tests again on Lucas - and made a fuss of him and dosed him up with magic medicine.  She was lovely.

Long story short - the Dr came to see Lucas and gave him a thorough thorough thorough testing - and told me I did exactly the right thing - and also gave me some excellent medication advice.  Lucas got home and fell fast asleep (un-medicated!) and probably had one of the best nights sleep he has had for ages.

Note to self... hmmm take him to that park more often!! - JUST KIDDING!!!

Today has been a quiet day.

Tomorrow - if its nice - we are off to a Train Museum (yawn!) but Lucas and Marcus will love it!   I am sure there will be a coffee shop there... with cake.




Tuesday 6 August 2013

Milestone - Lucas read All Cats have Aspergers

Hello Blogland

First of all, apologies, this post is being written "after a few private tears" have been shed.

For some reason - mid decluttering Lucas' toy pile - while looking for his Jenga - I decided we would sit down and read "All Cats have Aspergers" together.

Lucas read the book to me.

We discussed each picture (glossy photo of a different gorgeous cat on each page) and Lucas read the words - and discussed each statement.

It was a "one small step for man - one HUGE step for Lucas moment" - there were no tears on Lucas' side - just - that's right - that's me; turn the page - I agree, that's Me,   I'm like that - that's me.   Oh cool! - she's so cute!! (tickle cat under chin).

He was so calm and collected and almost at peace it was amazing.  Then I asked him what he thought, he said - its a great book - I wish there was a school for people like me......

That last part knocked me for 6 a bit.   I just said - maybe there is, we can cross that bridge when we come to it.

THEN he went back to Minecraft - and said - but ... where is my Jenga?

Normal service resumed......

Post written in a very RAW state of mind.


Love and best wishes to all.


Friday 19 July 2013

A Eureka Moment

Hello Blogland

Its the last week of Year 3 - 3 more school days left before the Summer Holidays!!

I'm quite looking forward to NOT having to fight Lucas to get out of the door by 8:50 to be in the School gates by 8:55 and not having to sign in the late book - ah - 6 weeks of not doing this this :) - bring it on :)

Ok... the Eureka Moment explained.

This happened last week - and it was purely spontaneous and low key and completely "off-the-wall" and un-planned - but it happened - and it was a major one small step for man - one huge step for Lucas and his ASD-Life.

Long story short - Lucas has been accepting his condition over the last 6 months, we haven't had any deep and meaningful conversations, Lucas has just been putting 2+2 together and getting 4 all the time.   - Note to others regarding when to tell - my advice would be - not to worry and just let Nature take its course - and when it "happens" seize the moment - and carry on :) - TV programmes help big time!! - and can take you by surprise especially as you don't know their schedule.

Lucas found out while watching a CBBC'S Newsround Special on Autism, Aspergers & ADHD - the Teenage Girl "told" him - and he compared himself to another boy in the programme who was really good at a World of War Game - Lucas was glued to the programme, learned alot - and said when the Boy came on - He's Like Me - and Minecraft... that was in the Easter Holidays.

LAST SATURDAY

Lucas was watching TV - and playing Minecraft - and maybe inventing something too - he can multi-task - and he was watching 12 Again on CBBC.   This is a Programme where day to day celebrities that Children know share memories of how things were when they were 12.

Lucas was watching this - and Louis Smith came on.   Louis_Smith_(gymnast) - Wikipedia Page

Lucas watched him with 100% focus.   He was talking in a low key and really friendly manner about his school, how much Gymnastics meant to him - and then - he said I've got ADHD - this is " ..... explanation ....." he went on to spend about 3 minutes discussing his ADHD and how it affected him - and how he put all his energy into his Gymnastics - I did not listen word for word - I was too busy focusing on Lucas' reaction.

Louis Smith said he was diagnosed at 7 - Lucas immediately said - Like ME! - and then at the end Lucas said - SO... that means I can win Olympic Medals too!!!!!!!!!!!!!!!! Cool!!!!!

The Celebrity changed, and then I left the room...

Got in the car and drove off to have a moment on my own (a few tears too).

Ok, this may not make sense to many people, but to others - I am sure you will "understand" :)

So.... in a nutshell - Lucas wants to win an Olympic Medal - I'd better add it to the list :-)

Happy Friday People!




Monday 8 July 2013

Proud Parent Proud Parent Proud Parent

Hello Blogland

How are you?

Today is a good day.

First of all for new readers - a bit of a recap.

Lucas does not do well in Groups.  He has problems with Group work at School.   At School he even does Group Activities Solo.

Tennis Club is Not School - and Mel has worked her amazing Magic and made Lucas 100% part of not just one Group but TWO! - this is an amazing achievement.   He is a permanent member of the Mini Tennis Orange & and Mini Tennis Orange/Green Squads that meet Mondays & Wednesdays - and they miss him when he's not there :o)

Watching him in his Tennis Groups you cannot tell he has Social Behaviour Group Issues - he is in his element and its brilliant (thanks Mel!)

Today was Monday

Today was The Spring Term Tennis Assessment Tournament for Monday Group.

Lucas asked me to to watch - so I did. :o)

From the outside it looked like he was paying attention 100% and I saw him hit some great serves and lovely rallies -  Ok, I was a bit of a proud parent regarding his on-court behaviour - he looked so "relaxed" and happy too.   Thank you Mel for all your hard work getting him so perfectly settled into Groups :o)

It was an end of term assessment - he came 5th overall today - with some great feedback.   I was very impressed and told him how proud I was of him.


He has a 1-1 Lesson tomorrow - photos will follow :)


Love and best wishes to all



Today's result


Tennis 6 - ASD 0 !!!!!!!!!!!!!


Monday 1 July 2013

Meetings and Meltdowns

Hello Blogland

A quick update.

How are you all?

Dayna - thanks for the nudge - and thanks for the chat, as usual, even though you are millions of miles away in China - you again prove that you "understand" me - please send friends the instruction manual :) - One day we will meet again in Starbucks and have a major face-to-face catch up - until then (((((((((((((thank you))))))))

ON A lighter note - I went on a Course - How to Deal With Meltdowns.    I hoped I could get some tips and tricks from it.

OK - it looks like I am a complete natural at Coping with Meltdowns - I thought I just used common sense - but - apparently not -

I have found out that I am an Expert on the Low Arousal Technique (oh I can see all the double entendres here! - I WISH! haha) - but apparently that is the name of the "Technique" - and apparently I am an expert at it.

*** The course was great - I just was really surprised that what I have been doing was 100% the correct way to cope - I was surprised - I didnt realise I have had the "LAT" serum injected into me :)

 GREAT I have found my Purpose!!!! -   NOW can I have a nice purpose?   One with wine? and flowers and holidays maybe?

I have decided I want to learn Sign Language - I think this will help alot.        I know that "Universal Sign Language is also extremely useful" haha - but I seriously think I should look into signing up for a course (haha) - does anyone know of any good ones?

Lucas moves on to Year 4 in September.   He is already doing Year 4 Maths - and finding it great fun.   His Teacher has finally set some great classroom procedures for him - that work for him - I hope that she makes sure his New Teacher carries on the techniques.

Until Next time...

Best wishes People!!!

(and for ASD People - Watch out for the Sledgehammers - they are hitting regularly at the moment! - must be the weather).

Tuesday 30 April 2013

Its been nearly 2 months since my last posting

Dear Blogland

Sorry for not posting until now!

How are you?

Well, since my last post we have had the Easter Holidays and lots of interesting stuff - its been quite a busy time!

A few major milestones have been reached.

1.   Lucas HAS FINALLY SETTLED INTO YEAR 3!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! - it has only taken 2 terms - Lucas had an excellent School Report and his IEP Meeting last week was fabulous.   His teacher has arranged for some "really unique - Lucas-styled" changes to the classroom environment - she proved to me during this meeting that she really "gets" him!   A big relief.

2.  Lucas came second in his Monday Group mini Easter Tournament! - I was so proud!   He came second! - and Daddy even got to see the prize ceremony where he was presented with a chocolate Easter Bunny  (which lasted a whole 3 seconds after photographing) but....we were so proud! (Before any witty readers say it... no.... there are more than 2 people in his group - there are about 12).

3.  The Easter Bunny must have been proud of him - he had two deliveries of eggs - and STILL has some left!

4.  The Sun started shining!!!!!! - so we bundled up his "Birthday Bicycle (December) and took Lucas to the local Park to learn to ride his new Big Bike  There has been lots of SNOW since December! - it was my Easter Holiday Mission - and I am proud to say.... Mission Accomplished!

I planned to do the hold the saddle thing, Lucas was muttering and mumbling and telling me I wasn't holding the bike right..... and then I turned to tie my shoelace, then looked up and Lucas was gone! - HE taught himself in 5 minutes! - and he has no fear - he loves his bike.

We also got to Stonehenge - on the other day the Sun Shone!! - what an awesome experience - there is definitely some real magical electricity and awe there.   Lucas loved it! - and they also take HAND cards! bonus! - Lucas really felt like a free spirit - we are going to take him to Avebury Stones too next time we go.

There... a quick update ....

Welcome to all my new readers - hope this blog is helpful to some.

Best wishes to all!


(Happy Kings Day Sjouke :)

Friday 8 March 2013

Lucas's Tennis Lessons - the promised pictures

Hello Blogland!

Half-term has been and gone and another week of school whizzed by too.

I promised photos of Lucas's 1-1 Tennis lesson - so - here are some video pics.   Apologies for the quality - and apologies too to Facebook friends you have already seen them :-) (so here's another look!) 

I can only take photos during his 1-1 lessons for "photographic privacy rights" and respect to other parents in the Squad.

He's doing really well - he loves his lessons, and he has really settled into his 2 Squads too.   He has his weekly routine.

Monday - 4-5pm 
Wednesday - 5-6pm 

with a backup plan of Saturday 11am if we miss any of the above.

Wednesday is also his afterschool - but before Tennis Subway day 
(9 grain 6inch Tuna and Sweetcorn with Cheese - toasted, Oasis Drink, Cheese and Onion Crisps - and a cookie) - the man remembers his order!. - it fills him up with the required energy to wear Mel out at 5pm :-)





Enjoy! - he did :-)

This week is "Indian Wells Week" - I loved this tournament, Marcus was a photographer here for a few years - he had to stop when Lucas came along - ok when Lucas was 3... travelling around got too much with him :-) - but Lucas has been to this Tournament twice! (2 months old, and 1 year old) - we hope to take him back again when he's 9! - that gives me 12 months! - haha

To everyone in Indian Wells this week - have a great time!

To everyone at Aces for Autism! - congrats on a fantastic looking event last week!

Best wishes to all that read my ramblings.

Until the next one!



Louise 



Wednesday 20 February 2013

Half-Term - Half-Way Report!

Hello Blogland!

Well, here it is, it's Wednesday... halfway through the holiday.   How have I coped with my "do something every day mission?" - I am surprising myself!

Monday - Planned Haircut - turned into a Scooter-thon  at the local park.
4.30pm Fairland Valley Park - watching Sunset

Action Man! (he started the day with a coat - I promise!)

Tuesday - Auntie Mandy came to the rescue! - and took care of yesterday's Planned Haircut! - of course, they just walked straight into the hairdressers, and sat down straight away - no waiting, and were back in about 20 minutes flat.   Note to self.   Send Mandy again next time.... ;-)

Haircut - 19 Feb

Wednesday

NO plans planned.... Oh no!!! what to do!!!!!!!!!! - Auntie Mandy and I bundled Lucas into the Car and went on a magical mystery tour - and ended up here! - Deacon Hill

Mountain Climbing - it was a very steep hill!

We had a well deserved Pub Lunch at The Raven, Hexton - which Lucas showed off all his charming manners to a tee :)

So now its 8pm and Lucas is fast asleep! - not surprised :)

Tomorrow?

Its Thursday.... Tennis Lesson day... more photos to follow...

Friday??? to be continued ....

Sunday 17 February 2013

Half Term

Its half-term week! - no school! - Lucas is a very happy little boy :-)

I have decided to put my Pro-active Head on.

--- hmmm, its a bit tight ---

Tomorrow is Monday - and I have decided we are going to achieve a different "task" each day of the week.


Monday's task......   To Get Lucas a Haircut!  

Tomorrow (hopefully) we will go into Old Town and sit still in the Barber Shop and wait his turn -

That is tomorrow's mission!  - We have been going to this same man for about 5 cuts now, his wife used to be Lucas' Dinner Lady.

I will be setting the "stress-levels" to LOW - and be hoping they will not increase to MEDIUM - if they reach HIGH?  Hmmmm.... fingers crossed we have LOW..

It is 10pm at night.... and Lucas is watching TV - he is fascinated by the programme he is watching..... - and has pleaded that he watches it all.....  

It's the Wonders of Life - with Professor Brian Cox.... Lucas is 8! and he is talking back to the TV - with interest!!! incredible.

Well, its ok, there's no school tomorrow.

Friday 15 February 2013

feelings 2.0

Hello Blogland

I'm back....  Mood is still "ask me again next week" - but strangely I do feel a bit more positive - I have taken action on a few things, and seem to heading towards the right track.

To the people that contacted me last week.   Thank you - thank you.

I did NOT go to the Angels meeting (bad me!) but I did have a chat with Lucas' Tennis Teacher - as he had a massive "Fright Fight Flight" attack - we have compared notes and have an action plan.   A positive step - It was just a Group Reaction, it was to be expected - this was the first one.

He has a 1-1 lesson on Tuesday - and there will be photographs :-)

I booked an appointment to have a chat with Lucas' Teacher - and as at this morning I was still awaiting the appointment time.   Lucas was 1 minute late this morning, so I thought - best take him to the Office and sign him in, then we were met at the Office Door by the Headmistress.   She very sweetly took Lucas in and said - He's not late! - I will make sure he's registered on time - in you go Lucas! - then she turned to me and said you wanted a meeting with Lucas' Teacher?   Step into my Office.....

Panic Panic Panic..... completely unprepared! - what do I say - braincell - quick!!! what did I want to say???? - I remembered!!!! - it is amazing what you can remember in 2 seconds.

I just said - Maybe I am over-reacting, but Lucas really isn't happy at the moment and I need to cover all areas for my piece of mind.   She said - Not to Worry! I did the right thing (etc etc etc) and that she was unaware of any problems, but would be talking to his teacher.   I explained that molehills can be mountains and I'd rather tackle the smallest of molehills - she was great.

She then said - OK have a great Half-term - and come and see me at the end of the first week!

I have been ordered!

SO! - I have "done my bit" - now can someone look after me instead?

Action plan.... Go to Angels.....  OK scratch that - its Half-term.

New Action Plan - have a fun-filled action-packed Half-Term Break with Lucas -

(send him to Auntie Mandy's :-) !!!!)

Lucas finished the week on a very positive note

He had a priviledge on Monday - and he managed to keep it all week until Friday

He had "Friday golden time" at school - a reward for Priviledge Holders.
He also had "Laptop Time!" - his own personal reward from his Teacher for being on time for school every day this week!

He also earned an Eiffel Tower from Auntie Mandy for trying hard for the past 3 weeks (15 stepping Stones earned).

(Ravensburger 3D Puzzle - purchased at 7.35pm - Box opened at 8pm Tower built by 21.27pm)

Tomorrow it will have pride of place on his Trainset Table - where he has a Big Ben Model - and a Eurostar train.......   - maybe if he is REALLY good - he may go on the real thing this year some day.


Tuesday 12 February 2013

Feelings - a bit deep and meaningful

Hello Blogland

How are you?

Its Pancake Day - and I've done the matriachal thing and cooked up lots of pancakes today - I also managed to drop a pint of milk and watch the bottle smash into lots of pieces along with the river of flowing milk pouring out too - Now that was fun.   As at the time of typing I "think"   every single shard has been recovered - note to all - Nope - I'm not crying..... :-) - its only spilt milk :-)

I also discovered that Asda Chocolate and Caramel Sandwich Spread makes the best Pancake sauce when melted in the Microwave for a minute.  

Ok.... So... how's my mood today?     Hmmm its "definitely in call me next week and I'll get back to you...."

When I started all this (forced) ASD Aspergers Training there was a phrase that kept recurring.   Fellow parents quoting their feelings as ".... everyone is going to Paris.... we are planning to go to Paris - but instead - we discover we have arrived in Amsterdam......"   I think I am slowly realising what this means... Oh well - better late than never.

I definitely feel split away from all my friends.   The lonlieness is a killer.   All my friends have "moved on" yet I feel I am stuck in a ditch at a road block.   The Policeman at the road block is very nice, but not exactly very helpful.

A friend last night actually said - We are off to Paris in May are you coming too?   I politely said - No, sadly we are not... - I didn't have the energy to go into detail. - It's much easier to just smile sweetly and carry on.

Lucas is struggling at his new school.   He does not like it.   He got a priviledge yesterday, but was borderline meltdown all evening.

Tomorrow is Wednesday - I will try and get to the Angels Meeting tomorrow - it may help.

..... going to raid the Chocolate Sauce..... (if there's any left......)

Best wishes to all


Love


Louise

Wednesday 6 February 2013

ASD Wins

ASD Aspergers Wins - 60 60 60

It wasn't as if I threw in the towel..... It stole all the energy to find the towel!

Please send me more energy

This is a cunning and devious condition - please send me a new braincell - this one has expired.

Tuesday 29 January 2013

Danger - Low flying Waterbottle!!

Hello Blogland

How are you?

It's Tuesday! (I think!)

I had a chat with Lucas' teacher on Friday morning, and asked if there were any problems this week, I explained what happened Thursday night to her and even said I was in two minds whether to bring him into school that morning or to keep him home, she was very understanding, and promised to look out for any suspected triggers, but was also able to tell me that she thought Lucas had been working extremely hard that week at working hard! - yes - that does make sense if you read it 6 times :) - so I left the meeting feeling very positive.

We had a nice weekend, so pleased the snow had finally gone - although my sister was NOT pleased when her road turned into a river when she came to pick Lucas up for the afternoon on Sunday...

Monday was a slow morning - we got to school at 9:15am - well, we haven't been in the Latebook for ages! - in fact that was the first time this year!!!!!!!!!!!! - so we had to check it was still there.    There was just no point trying to speed him up Monday morning, we got everything done eventually, and Lucas was in happy mode to start the day.

Today was an interesting one.   We were going to be on time!! - seriously! - and then... Lucas found out that if he threw his book bag up in the air and didn't catch it - the really heavy metal swiss waterbottle inside his bag will  land on his head and hurt him badly...

Today he spent the whole day on the sofa with alternate frozen flannels placed over the massive lump on the top of his head.

Top Tip -  Get 2 face cloths or flannels - put one in the freezer for 20 minutes - and the other draped on the top of Lucas' head - change flannels every 20 minutes.  This soothes and smoothes down the large lump, and keeps Lucas happy watching the time.

Today has been very quiet, Calpol was our good friend.   We did NOT visit the Hospital, but I did have him on Amber Alert just in case.

Best wishes to all that read this...

Good night......


Thursday 24 January 2013

Reality Check

Hello Blogland

How are you

To be honest I have been in denial for a few weeks now, arguing with myself that we had this condition wrapped up, and things seem to be going great - too great! - we have achieved so much - we can do this - its easy.   That sort of thing has been going through my mind, with a bit of extra guilt and "you really should go to more meetings" thrown in on top too.

OK......   SO I got the reality check today delivered by sledgehammer.

I am writing this "Post Meltdown" so -  I apologise now if this seems a little raw - but.... all I can say is Sorry. - but on a good side - I did find a good article - how to deal with Meltdowns....

Meltdowns - How to Cope

The simplest of things can just go crazy - note to self - YOU SHOULD KNOW THIS ALREADY!!!!!

This is the crazy situation.

My friend kindly picked up Lucas from school and we were going to have a mini playdate with her son and their friend.   3 boys were going to be playing and we were going to have a cup of tea and a chat.

Simple easy every day scenario! - right?

All 3 boys are even in the same class at school! - it all went pear-shaped.   Totally pear-shaped, sadly the other boys left, and THEN the whole world went mad.   I have since diffused the situation, and found the suspected trigger...

To all non ASD people reading this, he did not have a "tantrum" - he had a meltdown - and it was really disturbing to see him throw his precious toys around and then start kicking his legs against the wall in a perfect rhythm, the look in his eyes was fixed - and I closed the door and let him carry on.

The article above states that both Parents and Child are mentally exhausted - this is a total understatement.    It feels like someone has just attacked me with a vacuum cleaner and sucked out all my life - I feel totally crushed from within

We had the "recommended" calm down talk, and it is heartbreaking to see him in tears talking about the incident.  We spent the rest of the evening just quiet, with no computers or distractions - except Top Gear - he likes watching James May programmes, even Top Gear was turned off after 15 minutes.

Then I had the 20 minute phone call apologising to my friend - oh the guilt trips this condition sends you on! - they are unbelievable!

The result of this evening?   A very exhausted drained little boy is fast asleep - and a totally drained Parent - not really sure which way to turn.

I do think this this was a tip of the ice-berg, there is a further issue, I am sure.   I will need to look deeper at school.

I think a meeting with his teacher is on the cards.

These are my thoughts - "live" as they happened - post "first major melt-down of 2013" - lets hope they stay away for a while.

Love and best wishes to all that read this




Monday 7 January 2013

New Year, New School Term, New Tennis Course

Hello Blogland

Today is New School Term Eve.

Lucas goes back to school tomorrow after a long and enjoyable Christmas Break.   Lucas had a great holiday!

2013 has well and truly started - and with this new year, we are signing him up for 2 Tennis Group Sessions each week! - yes, that child that could not cope with working in Groups and PE at School is now an established member of Lister Tennis Mini Tennis Orange Squad.   I have just dropped him off for the first session of the Year - and they were all sitting round the coffee table chatting about their holidays - and Lucas was sitting happily "glowing" sharing stories with his little friends.   It was a really lovely sight to see.   This is a major achievement! - one small step for man - one huge massive step for an ASD child!

Last year we tried with just one Squad meeting, with a separate 1-1 lesson each week - but this Term, we are going for 2 Groups! some of his friends are already in both groups so - it should only be a good thing!  - Social Networking - Lucas-Style!

Aspergers and Autism have been in the news recently for all the wrong reasons, since then a really great site has been created called http://www.facebook.com/AutismShines - I posted Lucas on there - there are lots of amazing stories on that site.  This site is brilliant.

Since joining that site I have also been reading a few more "Mom Blogs" that have filtered past me - phew I am not the only one, its lovely to read that there are others like me sailing the same boat upstream along the same scary river - (where did THAT come from????)

Melatonin is still my best friend.   I did a controlled experiment - it eased my mind! - I tried putting Lucas to bed without it one night - just to see - and the clock instantly rolled back 18 months! - and my poor little Lucas was instantly reverted back to how he was pre-diagnosis - and it was painful to see him saying "I have tried really hard mummy, but I just cannot get to sleep!" - Melatonin works for Lucas and looks like it will be in our lives to stay.

Why did I do this?   The Gremlin inside me with all the doubting questions needed to be quashed.  So I did!

ASD Parents will "understand" :-)

To all Parents with Children starting back at school tomorrow - Have a good day tomorrow!

Best wishes from the UK to all that read this.


Louise - calling LIVE from Lucasland



Tuesday 1 January 2013

Happy New Year Blogland!

Hello Blogland!

Welcome to 2013!!!!!!!!!!!!!!!!!!!!!!!!

How have you been?

We have been GREAT!

December is a big celebration month - big on celebration - but very tough on the Bank Balance - but hey! - that's life.   December has.... My Birthday (yay - happy birthday me!) Christmas! - Merry Christmas! - Lucas' Birthday - PARTY! - and then to cap it all nicely New Year's Eve.   So... quite a quiet month really...  haha.

My Birthday was lovely - a nice family Sunday Lunch at the Local Chinese Restaurant - it was all you can eat - Lucas had 3 trips to the Chocolate Fountain! and lots of Egg Fried Rice (separately - obviously).

Christmas was quiet, Father Christmas was very proud of Lucas had had him listed very high up on the Good Boy List - he has been very proud of him this year, and I think he had managed to get everything on his Surprise Wish List too.

We had Christmas Turkey Surprise! for lunch - the surprise?   Marcus bought a massive Pork Joint at 5.30pm Christmas Eve weighing in at over 6 pounds in weight - (3 kgs) for the bargain price of £1.56 - seriously! - and it was a very very very nice piece of meat indeed!  Marcus now has a full time job going "bargain shoppinging on Holidays now".  Marcus came home with lots of lovely goodies from his Shopping Expedition.  He had a similar result New Year's Eve too.

Lucas's 8th Birthday was lovely.   It was a real Friends and Family affair.   We managed to book a Bowling Party for him at the local Hollywood Bowl.  This was a risk as it was a "Group Event" - but Lucas has been doing so well with his Group work with Mel and his Tennis Lessons, we took the risk and Booked a Group Bowling Party - ok, I confess - the massive in bold statement on the Party advert stating PARTY HOST! - was very tempting... I really just handed 12 Children over to this poor defenceless Party Host and let him get on with it... it was fun!

Well, actually there were 12 of us Adults all looking on watching the "Party Host" trying to handle the 12 Children.... and... yes... it was fun..... haha - and they provided us with free Coffee too! - Lucas announced that it was his best Birthday Party Ever! - he had a great time.

One of Lucas's birthday presents was Monopoly Millionaire - a revamped version of Monopoly.   (Thank you Auntie Debbie).

We played this on New Year's Eve.   Daddy won the first game - then I beat Daddy on the second game! - YAY me!  I AM writing this fact down! - we had a lovely family New Year, Lucas stayed up till midnight and watched the fireworks on the TV and really enjoyed the evening.

On New Year's day we spent the afternoon "Scooting" around the local Park.    Definition of "Scooting" - 8 year old child "Scoots off on Christmas Scooter really fast" - Auntie Mandy and Louise spend the afternoon trying to catch up - it's a New Year Workout...

We then got back and played Monopoly Millionnaire again.  THEN  Lucas really surprised me.

He is only 8 years old.   He has only played this game 3 times.   He had managed to purchase "Park Lane and Mayfair equivalents" on the board - the richest squares, and he had also put 2 "free houses" on the cards - and then it was his next go, he just said - OK.... how much do I need to buy another house?  - I told him it was M60 each for those cards - he then said - ok... I already have 1 on each, here is M120 for 2 more, then another M120 for another 2, then another M120 for another 2 - have I got 4 houses now?  ok cool - so here's another M120 for a hotel on each... is that right?

I was impressed.    VERY VERY impressed.  I told him how extremely impressed I was with his maths and his business head.   He is 8 years old! - and that was his 3rd go at that game.

HAPPY NEW YEAR! - AND BEST WISHES TO ALL FOR 2013